Table 1. Time variables over the course of the screening.
Variable (days) | Median | Range | Median | Range | Median | Range | ||
a) Birth | 3 | 3–19 | a) to e)birth to sweat test in CF center | 26 | 4–314* | a) to g)birth to genetically confirmed diagnosis | 34 | 13–135 |
– drawing of heel prick sample | ||||||||
b) Drawing of heel prick sample | 2 | 1–5 | ||||||
– screening for CF | ||||||||
c) screening for CF | 13 | 0–37 | ||||||
– reporting of screening result to CF center | ||||||||
d) Reporting of screening result to CF center | 4 | 0–38 | ||||||
– telephone call to parents | ||||||||
e) Telephone call to parents | 2 | 0–16 | ||||||
– sweat test in CF center | ||||||||
f) Sweat test in CF center | 7 | 0–63 | f) to g)sweat test in CF center to genetically confirmed diagnosis | 14 | 1–80 | |||
– arrival of blood in genetics laboratory | ||||||||
g) Arrival of blood in genetics laboratory | 6 | 1–22 | ||||||
– genetically confirmed diagnosis |
*Outlier of 314 days to sweat test in CF center: this family emigrated to a foreign country immediately after the birth of their child, returned nearly a year later and was then offered a sweat test. The finding in this case was negative for CF. CF, cystic fibrosis