Table 1.
Participant characteristics (N=62)
| % | Means ± SD | |
|---|---|---|
| Adolescent age (years) | 15.47 ±1.41 | |
| Sex (% female) | 43.5 | |
| Ethnicity (% white, not hispanic origin) | 88.7 | |
| Primary caregiver marital status (% married) | 85.5 | |
| Primary caregiver education level (% with at least a college degree) | 35.5 | |
| Primary caregiver employment status (% employed) | 80.7 | |
| IBD diagnosis (%) | ||
| Crohn’s disease | 79.0 | |
| Ulcerative colitis | 21.0 | |
| Disease severity | ||
| PCDAI | 11.68 ±10.01 | |
| Inactive disease | 40.8 | |
| Mild disease | 51.0 | |
| Moderate-to-severe disease | 8.2 | |
| LCAI | 2.85 ±3.87 | |
| Quiescent disease | 61.5 | |
| Response to therapy | 30.8 | |
| Active disease/no response to therapy | 7.7 | |
| FAD problem solving | 1.84 ±0.37 | |
| FAD communication | 1.93 ±0.42 | |
| FAD roles | 2.14 ±0.33 | |
| FAD affective responsiveness | 1.76 ±0.48 | |
| FAD affective involvement | 1.86 ±0.42 | |
| FAD behavior control | 1.54 ±0.32 | |
| FAD general functioning | 1.66 ±0.37 | |
| IMPACT-III general well-being | 58.03 ±8.74 | |
| IMPACT-III emotional functioning | 46.13 ±7.12 | |
| IMPACT-III social functioning | 21.87 ±2.77 | |
| IMPACT-III body image | 11.32 ±2.41 | |
| IMPACT-III total HRQOL | 144.52 ±19.91 | |
FAD, family assessment device; HRQOL, health-related quality of life; IBD, inflammatory bowel disease; LCAI, Lichtiger colitis activity index; PCDAI, pediatric Crohn’s disease activity index; SD, standard deviation.