Table 1.

Nutritional status and CFQ dimension scores at each CFQ.^*

	CFQ-1	CFQ-2	CFQ-3	Overall**
N	94	91	80
Age (years), mean ± SD	13.5 ± 2.8	14.5 ± 2.8	15.5 ± 2.8	--
Nutritional Status
Weight percentile, mean ± SD	43 ± 30	46 ± 29	45 ± 28	44 ± 29
Height percentile, mean ± SD	42 ± 30	42 ± 30	42 ± 30	42 ± 29
BMI percentile, mean ± SD	47 ± 28	51 ± 28	50 ± 26	48 ± 26
Short stature† [N (%)]	12 (13%)	10 (11%)	10 (13%)	12%
Underweight† [N (%)]	9 (10%)	8 (9%)	5 (6%)	8%
Short and underweight† [N (%)]	1 (1%)	2 (2%)	0	1%
Below BMI goal† [N (%)]	53 (56%)	46 (51%)	41 (52%)	53%
CFQ Dimensions (mean ± SD)
Eating disturbances	88 ± 19	91 ± 16	92 ± 16	90 ± 13
Physical functioning	84 ± 18	85 ± 18	88 ± 16	85 ± 16
Emotional functioning	82 ± 16	83 ± 14	84 ± 15	83 ± 13
Body image	81 ± 25	81 ± 24	82 ± 23	82 ± 21
Social functioning	80 ± 14	81 ± 16	81 ± 16	81 ± 13
Respiratory symptoms	77 ± 18	78 ± 16	79 ± 14	77 ± 14
Treatment burden‡	63 ± 19	68 ± 21	65 ± 18	65 ± 15

^*For assessing change over time, nutritional status GEE models (WtZ, HtZ and BMIZ) controlled for age, sex and mode of diagnosis; for CFQ dimensions, GEE models controlled for age, sex, mode of diagnosis and CFQ version

^**Overall mean values represent the average of means from each subject

^†Nutritional status indicators are defined as follows: short stature is height <5^th percentile; underweight is BMI <10^th percentile; below BMI goal is BMI <50^th percentile.

^‡p=0.045