Table 1.
Author | Country/region, year of publication | Number of participants | Age range and/or mean age (years) | % Children who knew diagnosis |
---|---|---|---|---|
Arun et al. [15] | India, 2009 | 50 | Mean: 8.98 | 14% |
Bachanas et al. [9] | USA, 2001 | 36 | 6–16 Mean: 9.6 | 67% |
Bhattacharya et al. [23] | India, 2010 | 145 | Mean: 9.1 | 41.10% |
Biadgiling et al. [24] | Ethiopia, 2011 | 390 | 1–14 Mean: 8.52 | 17.40% |
Bikaako-Kajura et al. [22] | Uganda, 2006 | 42 | 5–17 Mean: 12 | 29% |
Blasini et al. [34] | Puerto Rico, 2004 | 40 | Minimum: 9 | 20% partial disclosure |
Boon-yasidhi et al. [27] | Thailand, 2005 | 93 | 5–15 Mean: 8.6 | 19.80% |
Brown et al. [14] | Nigeria, 2011 | 96 | 6–14 Mean: 8.8 | 13.50% |
Butler et al. [33] | USA, 2009 | 395 | 5–21 Mean: 9.1 | 100% (inclusion criterion) |
Ferris et al. [12] | Romania, 2007 | 325 | 5–17 | 69.20% |
Funck-Brentano et al. [37] | France, 1997 | 35 | 5–10 Mean: 7.6 | 17% |
Hammami et al. [13] | Belgium, 2004 | 11 | 0–18 Mean: 10.75 | Not mentioned |
Instone [32] | USA, 2000 | 12 | 6–12 | 66.60% |
Kallem and Renner [28] | Ghana, 2011 | 71 | 8–14 Mean: 10.4 | 21% |
Kouyoumdjian et al. [17] | South Africa, 2005 | Not reported | Not reported | Not mentioned |
Lester et al. [36] | USA, 2002 | 51 | Not reported | 43.10% |
Lester et al. [35] | USA, 2002 | 51 | >4 | 43.10% |
Marques et al. [29] | Brazil, 2006 | 22 | 10–20 | 100% (inclusion criterion) |
Mellins et al. [31] | USA, 2002 | 77 | 3–13 Mean: 8 | 30% |
Menon et al. [16] | Zambia, 2007 | 127 | 11–15 Mean: 12.4 | 37.80% |
Moodley et al. [20] | South Africa, 2006 | 176 | 0–11 Mean: 3.3 | 9% |
Myer et al. [21] | South Africa, 2006 | 40 health care providers | Not reported | Not mentioned |
Oberdorfer et al. [26] | Thailand, 2006 | 103 | 6–16 Mean: 9.5 | 30.10% |
Santamaria et al. [11] | USA, 2011 | 196 | 9–16 | 70% |
Thorne et al. [39] | Europe, 2000 | 140 | 0–19 | 18% |
Vaz et al. [25] | Congo, 2008 | 19 | 11–21 Mean: 16 | 100% (inclusion criterion) |
Vaz et al. [18] | Congo, 2010 | 8 | 8–17 | 100% (inclusion criterion) |
Vreeman et al. [19] | Kenya, 2010 | 123 | 0–14 Mean: 6.8 | 3.20% |
Waugh [38] | England, 2003 | 15 | 5–9 Mean: 7.3 | 0% (inclusion criterion) |
Wiener et al. [30] | USA, 1996 | 99 | 5–19 Mean: 10.5 | 75% |
Weiner and Battles [10] | USA, 2006 | 40 | 13–24 | 100% (inclusion criterion) |