Table 4.
Family Caregiver Outcomes - Items Ratings
Question | Baseline | 7 weeks | 12 weeks | 18 weeks | 24 weeks | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
N | Mean | SD | N | Mean | SD | N | Mean | SD | N | Mean | SD | N | Mean | SD | |
Caregiver Burden Scale – Items with score of >3.7 | |||||||||||||||
Time for Self | 117 | 4.15 | .925 | 99 | 4.13 | .888 | 93 | 3.98 | .944 | 73 | 3.89 | 1.10 | 69 | 3.87 | 1.12 |
Personal Privacy | 70 | 4.06 | 1.05 | 59 | 4.03 | .809 | 60 | 3.97 | .991 | 46 | 3.91 | .985 | 46 | 3.85 | 1.01 |
Time for Recreation | 112 | 4.05 | 1.09 | 98 | 4.22 | .856 | 85 | 4.01 | 1.04 | 76 | 4.07 | .971 | 71 | 3.99 | 1.05 |
Tension in your life? | 163 | 3.93 | .937 | 144 | 3.76 | .924 | 131 | 3.68 | .987 | 120 | 3.69 | .877 | 122 | 3.64 | .891 |
Vacation and Trips | 106 | 4.11 | 1.14 | 102 | 4.35 | .971 | 99 | 4.14 | 1.13 | 83 | 4.17 | 1.08 | 78 | 3.92 | 1.21 |
Time for Own Work and Chores | 93 | 3.96 | .999 | 76 | 4.00 | .800 | 75 | 3.83 | 1.08 | 55 | 3.82 | .945 | 60 | 3.97 | .882 |
Time for Friends/Relatives | 102 | 3.87 | 1.21 | 78 | 4.00 | .926 | 79 | 3.94 | 1.00 | 69 | 3.80 | 1.08 | 66 | 3.85 | 1.14 |
QOL – Items with score of <5 | |||||||||||||||
Distress of Patient’s Initial Dx | 155 | 1.20 | 2.05 | 138 | 1.55 | 2.16 | 123 | 1.42 | 1.92 | 115 | 1.33 | 1.62 | 117 | 1.61 | 2.28 |
Distress of Patient’s Tx | 140 | 3.51 | 3.39 | 123 | 3.50 | 3.10 | 117 | 3.29 | 2.83 | 109 | 3.03 | 2.61 | 113 | 3.01 | 2.70 |
Anxiety | 133 | 4.85 | 3.05 | 112 | 5.07 | 2.95 | 106 | 5.06 | 2.90 | 101 | 4.86 | 2.58 | 101 | 4.61 | 2.73 |
Fear of 2nd Cancer in Patient | 140 | 3.79 | 3.82 | 128 | 3.68 | 3.56 | 116 | 4.11 | 3.59 | 104 | 3.45 | 3.37 | 105 | 3.51 | 3.24 |
Fear of Recurrence in Patient | 145 | 3.14 | 3.66 | 129 | 3.12 | 3.44 | 118 | 3.56 | 3.46 | 107 | 3.07 | 3.22 | 111 | 3.26 | 3.24 |
Fear of Metastasis in Patient | 148 | 2.82 | 3.55 | 131 | 3.05 | 3.40 | 119 | 3.52 | 3.53 | 105 | 2.55 | 3.09 | 111 | 2.63 | 3.00 |
Family Distress | 143 | 2.74 | 2.54 | 143 | 2.74 | 2.54 | 143 | 2.74 | 2.54 | 143 | 2.74 | 2.54 | 143 | 2.74 | 2.54 |
Rate your overall social well-being | 163 | 6.94 | 2.03 | 144 | 6.69 | 2.14 | 132 | 6.60 | 2.03 | 120 | 6.64 | 1.82 | 122 | 6.67 | 2.06 |
Uncertainty | 133 | 3.50 | 3.33 | 120 | 3.93 | 3.30 | 112 | 3.91 | 3.13 | 106 | 3.69 | 2.96 | 113 | 3.45 | 3.10 |