Table 1.
Participant Ratings of Barriers and Facilitators from Checklist and Number of “Top Five” Ratings for Items
|
How often do you agree with these statements? All or most of the time (1); some of the time (2); never or hardly ever (3) |
Average score |
|---|---|
| 37) Important people in my life want me to take care of myself | 1.07 |
| 22) I do things to take care of myself | 1.13 |
| 24) I can have a long life with HIV | 1.13 |
| 27) Going to my appointments will keep me well | 1.13 |
| 33) No one here will treat me badly because of my HIV | 1.13 |
| 34) I trust the providers here to take care of me | 1.13 |
| 21) Treatment for HIV is getting better every year | 1.17 |
| 1) A doctor, nurse, or counselor helped me get care | 1.23 |
| 23) I can get help getting to the clinic if I need it | 1.27 |
| 30) I need to take care of myself so I can take care of others (my family) | 1.30 |
| 44) The clinic staff help me to be brave when I think about my HIV | 1.30 |
| 20) I understand HIV and how it is treated | 1.33 |
| 48) When I am told when my next appointment is before I leave clinic, it is easier to be there | 1.34 |
| 16) I've been getting emotional support from others | 1.40 |
| 25) Appointments are scheduled at times that work for me | 1.40 |
| 5) I've been getting comfort and understanding from someone. | 1.43 |
| 8) My romantic partner provides me with love and care | 1.48 |
| 40) When I can get care for my other medical issues, it is easier to make my HIV appointments | 1.57 |
| 26) I know I won't wait too long during my appointment | 1.60 |
| 28) I know my way around the hospital and clinic | 1.60 |
| 4) Getting help with expenses makes it easier to come to my appointments | 1.63 |
| 42) Talking to a counselor makes it easier to take care of myself | 1.64 |
| 32) I take care of my HIV so I can keep going to work | 1.65 |
| 47) When I can talk to someone about my drug use, it is easier to keep my appointments | 2.32 |
| 11) I am worried about the cost of my appointment | 2.37 |
| 35) I worry that someone will find out about my clinic visits | 2.38 |
| 41) Some of my medications make me feel too ill to take | 2.55 |
| 36) I'm not sure I understand what the doctors and nurses tell me | 2.63 |
| 39) On days when I feel very sad, I do not like to come to the clinic | 2.63 |
| 49) I don't always have a working phone number. | 2.63 |
| 38) It is too hard to tell the doctors and nurses what is going on in my life | 2.67 |
| 9) I am not sure that the HIV medicine is good to take | 2.70 |
| 29) I missed appointments when I was drunk, high or hung-over | 2.72 |
| 18) Sometimes I am too sick to come to clinic | 2.73 |
| 2) If I don't come to clinic, I don't have to think about my HIV | 2.77 |
| 10) I am worried about missing a day of work | 2.77 |
| 13) I did not always get the appointment information | 2.77 |
| 14) I do not always have access to a car that works, so sometimes I skip appointments | 2.79 |
| 19) I had to wait a long time for my appointment here and I forgot it | 2.80 |
| 31) I sometimes miss appointments because I cannot tell anyone I am getting treated for HIV | 2.80 |
| 7) When I don't have enough food for my family, I don't come to my appointments | 2.83 |
| 12) I cannot get my questions answered in this clinic | 2.86 |
| 17) I have other people to take care of, so I cannot take care of myself | 2.86 |
| 45) The world would be better without me | 2.87 |
| 3) Everyone dies with AIDS, so what is the point of treatment? | 2.90 |
| 43) When my partner is angry with me I am afraid to come to appointments | 2.95 |
| 46) Things I have to do for my family keep me from coming to clinic | 2.97 |
| 15) I've been too worried about where I'm going to live, so I couldn't come to clinic | 2.90 |
| 6) Without child care, I cannot come to my appointments | 3.00 |