Table 3.
Self-reported data from the CDH survivors and their parents
| 1. Children | CHD | LEA | Norms |
|---|---|---|---|
|
Children’ QoL: Kidscreen-27 (0–100)* |
M ± SD |
Diff (95% CI)+ |
Diff (95% CI)++ |
| Physical well-being |
53.4 ± 10.7 |
5,9 (1,7 ; 10,1) |
−11,6 (−15,6 ; -7,63) |
| Psychological well-being |
53.4 ± 9.5 |
2,3 (−1,5 ; 6,3) |
−23,8 (−27,2 ; -20,3) |
| Parents and autonomy |
47.3 ± 7.9 |
−0, (−5,4 ; 3,5) |
−14,3 (−17,4 ; -11,1) |
| Peers and social support |
44.5 ± 9.5 |
0,1 (−5,0 ; 5,3) |
−16,3 (−19,8 ; -12,8) |
| School |
53.5 ± 10.0 |
3,0 (−1,2 ; 7,3) |
−13,2 (−17,0 ; -9,44) |
|
Children’ behavioral : SDQ |
M ± SD |
|
|
| Emotional symptoms |
3.0 ± 2.7 |
- |
- |
| Conduct problems |
2.5 ± 1.7 |
- |
- |
| Hyperactivity |
4.1 ± 2.4 |
- |
- |
| Peer problems |
1.6 ± 2.4 |
- |
- |
| Prosocial |
8.2 ± 1.5 |
- |
- |
| Total difficulties |
11.3 ± 5.7 |
- |
- |
|
2. Parents |
|
|
|
|
Parents’ QoL: SF36 (0–100)* |
M ± SD |
|
|
| Physical function |
92.5 ± 13.2 |
- |
- |
| Social functioning |
86.7 ± 19.1 |
- |
- |
| Role physical |
89.9 ± 15.3 |
- |
- |
| Role emotional |
63.2 ± 9.1 |
- |
- |
| Mental health |
71.4 ± 14.2 |
- |
- |
| Vitality |
71.7 ± 17.0 |
- |
- |
| Body pain |
83.8 ± 22.5 |
- |
- |
| General health |
79.7 ± 17.3 |
- |
- |
| Physical composite score |
55.9 ± 6.1 |
- |
- |
| Mental composite score | 46.7 ± 5.6 | - | - |
M±SD mean±standard deviation.
* Higher score, higher QoL level.
LEA long term leucemia survivors, norms, Kidscreen norms (sex- and gender- matched).
+ Diff (95% CI) CHD score – LEA score (95% confidence interval of difference); ++ Diff (95% CI), CHD score – norm score (95% confidence interval of difference).