Table 1.

Recommendations for protecting the privacy of health data

Privacy policy	Recommendations
Privacy awareness	Sharing the minimum amount of person-specific data to accomplish the intended purpose. When in doubt, err on the side of providing less data
Privacy by education	Privacy-awareness education; user-friendly way of setting privacy; use and protection of personally identifiable information (PII) policy; advance notice of any material changes to the privacy policy
Privacy by design	Building data protection and privacy by design into the platform; sharing anonymized data within and beyond the community
Privacy by regulation	Ensuring consent to non-medical uses before users’ data are used; banning unauthorized re-identification of anonymized data; prohibiting inappropriate uses of health data