Table 1. Existing Agreements, Related Policies and Guidelines Reviewed.

Organisation	Document	Version/Date
Avon Longitudinal Study of Parents and Children	Management and Policy	(v 3.0, Dec 2011)
Avon Longitudinal Study of Parents and Children	Access Policy and Material	(v 4.1, Oct 2012)
	Transfer Agreement
CARTaGENE	Access Agreement
Canadian Partnership for Tomorrow Project	Data Access Policy	(March 2012)
Electronic Medical Records and Genomics Network	Data Use Agreement	(v4.3, March 2010)
Generation Scotland	Management, Access and Publications Policy
International Cancer Genome Consortium	Data Access Agreement Goals,	(1 August 2009)
International Cancer Genome Consortium	Structure, Policies & Guidelines	(April 2008)
National Cancer Research Institute	Samples and Data for Research:	(June 2009)
	Template for Access Policy Development
P3G Ethics and Policymaking Core	Material and Data Access Agreements: Core Elements	(2008)
P3G Ethics and Policymaking Core	Model Consent Form	(Feb 2011)
The Cancer Genome Atlas	Data Use Certification	(1 March 2010)
	Agreement
The Cancer Genome Atlas	Human Subjects Protection and Data Access Policies
UK Biobank	Access Procedures: Application and Review	(v 1.0, 8 Nov 2011)
UK Biobank	Material Transfer Agreement for Data and/or Samples	(8 Nov 2011)
The Wellcome Trust Case-Control Consortium	Data Access Agreement	(v 18, June 2010)
The Wellcome Trust Case-Control Consortium	Access Policy: Access to Genotype Data	(v 1, July 2009)