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. Author manuscript; available in PMC: 2013 Aug 20.
Published in final edited form as: Ann Intern Med. 2013 Feb 5;158(3):222–224. doi: 10.7326/0003-4819-158-3-201302050-00025

Table. Questions and Responses Suggesting Involuntary Participation.

Questions and Themes of Responses Number (N=492) Percent Representative Quote Suggesting Involuntary Participation
Can you provide the main reason why you are volunteering to participate in this vaccine study?
 Obtain perceived effective vaccine 11 2% “They give you a vaccine that protects against the AIDS virus. You have to participate, but once you take the vaccine, it'll prevent HIV infection.”
 Gain employment or financial benefits 10 2% “If you volunteer, they'll give you a card that says you're a participant. You can ask for work with the card.”
What do you hope will come out of this study?
 Gain employment or financial benefits 10 2% “I want them to give us something after the study; a job, loan us money.”
What bad things do you think could happen in this study?
 Doctors would never cause harm 12 2% “If they felt bad things could happen, they would never do it.”; “After the Good Lord is the doctor.”
What would you do if something in the study made you unhappy?
A volunteer is obliged to stay in the study 13 2% “I'm obligated to accept whatever because I'm a volunteer”