Table 2.

Comparison of variation for leukodystrophy patients across PHIS children’s hospitals, for years 2004–2010. All numbers refer to leukodystrophy patients. Results are total for the 7-year period. Mortality rate is calculated as a percent of the total leukodystrophy patient cohort at each hospital. The cost/patient is the total cost of in-patient health care costs for each leukodystrophsy patient.

Measure	Total	Average/Hospital	Range
Number of patients	3,143	81	14–172
Number of admissions (n)	13,554	348	81–705
Admissions/patient	---	4.3	3.0–7.3
Mortalities (n)	268	6.9	1–17
Mortality %	---	8.8	2.4–18.1
Hospital costs ($thousands)	411,374	10,548	1,835–27,602
Cost/patient ($)	---	131,380	60,013–239,872
Total hospital days	136,776	3,507	826–7,307
Average length of stay/patient (days)	---	10.1	6.7–14.1
MRIs (n)	4,755	122	15–292
MRI/patient	---	1.5	0.7–2.5