Table 2.

Participant characteristics for face-to-face interviews and bulletin board discussion groups n = 10.

Conditions	Number of participants	Age range and mean	Gender
Duchennes muscular dystrophy	4	20–28 23	Males = 4
Spinal muscular atrophy	3	21–26 23	Females = 3
Other: undiagnosed, brain tumor, Friedrichs Ataxia	3	20–22 21	Males = 2 Females = 1