Table 1.
—Descriptive Statistics for Demographic and Clinical Variables for Each PAC-CF Survey
| Variables | Time, mo |
||||||
| Baseline | 3 | 6 | 9 | 13 | 18 | 21 | |
| Age, y | 32.52 (10.65) | … | … | … | … | … | … |
| Female | 55 | … | … | … | … | … | … |
| White | 94 | … | … | … | … | … | … |
| Hispanic/Latino | 4 | … | … | … | … | … | … |
| Currently married | 43 | … | … | … | … | … | … |
| Completed post-high school degree | 55 | … | … | … | … | … | … |
| Employed or student | 59 | … | … | … | … | … | … |
| Annual household income | |||||||
| ≤ $25,000 | 23 | … | … | … | … | … | … |
| $25,001-$49,999 | 14 | … | … | … | … | … | … |
| $50,000-$74,999 | 16 | … | … | … | … | … | … |
| ≥ $75,000 | 29 | … | … | … | ... | … | … |
| No response | 18 | … | … | … | … | … | … |
| Weight percentile | 42.04 (29.81) | 41.29 (29.13) | 42.22 (29.63) | 42.10 (29.54) | 42.35 (29.70) | 43.12 (28.88) | 42.86 (29.16) |
| FEV1 % predicted | 59.76 (22.40) | 60.33 (22.90) | 59.44 (23.61) | 58.93 (21.73) | 59.06 (22.56) | 57.93 (22.20) | 57.89 (22.46) |
| Exacerbations, No. | 0.65 (0.99) | 0.36 (0.77) | 0.40 (0.71) | 0.34 (0.66) | 0.66 (1.22) | 0.42 (0.86) | 0.35 (0.86) |
| Pancreatic sufficient | 12 | 13 | 12 | 11 | 11 | 12 | 14 |
| With CF-related diabetes | 15 | 15 | 15 | 23 | 21 | 23 | 22 |
| With Staphylococcus aureus | 35 | 38 | 41 | 40 | 44 | 44 | 45 |
| With Burkholderia cepacia | 8 | 9 | 9 | 10 | 10 | 11 | 10 |
| With Pseudomonas aeruginosa | 77 | 79 | 80 | 83 | 83 | 82 | 82 |
Data are presented as mean (SD) or %. Descriptive statistics were calculated using sample selection weights to adjust for the disproportionate stratified sampling design. CF = cystic fibrosis; PAC-CF = Project on Adult Care in Cystic Fibrosis.