Table 2.
—Descriptive Statistics for HRQOL Scores at Each PAC-CF Survey
| CFQ-R Domain | Time, mo |
||||||
| Baseline | 3 | 6 | 9 | 13 | 18 | 21 | |
| Physical domains | |||||||
| Physical functioning | 57.63 (26.81) | 59.44 (27.03) | 56.37 (28.19) | 56.24 (27.86) | 56.77 (28.21) | 54.71 (28.50) | 55.62 (28.04) |
| Body image | 63.85 (26.57) | 66.74 (25.49) | 64.35 (24.16) | 66.21 (25.37) | 68.04 (25.52) | 67.05 (25.79) | 67.16 (25.74) |
| Eating disturbances | 86.16 (20.07) | 84.48 (21.05) | 83.57 (20.95) | 83.60 (21.29) | 84.27 (20.52) | 83.78 (21.11) | 81.68 (24.12) |
| Digestive symptoms | 72.30 (20.28) | 75.39 (19.14) | 76.10 (18.89) | 74.93 (19.36) | 74.42 (19.09) | 74.33 (18.68) | 75.50 (16.81) |
| Respiratory symptoms | 55.69 (20.66) | 55.82 (21.45) | 54.40 (21.50) | 54.81 (21.59) | 55.83 (20.89) | 54.61 (20.81) | 56.34 (20.30) |
| Weight | 68.92 (38.81) | 69.56 (37.43) | 73.00 (35.04) | 71.97 (37.45) | 73.14 (35.64) | 71.54 (36.89) | 72.64 (35.58) |
| Health perceptions | 56.02 (23.77) | 59.06 (23.55) | 55.85 (22.68) | 55.42 (24.44) | 58.25 (23.07) | 56.85 (23.27) | 56.25 (21.55) |
| Vitality | 50.56 (19.05) | 50.32 (18.85) | 47.51 (21.19) | 47.15 (20.61) | 49.86 (20.01) | 45.69 (18.87) | 47.92 (18.81) |
| Psychosocial domains | |||||||
| Treatment burden | 55.64 (22.50) | 56.00 (22.92) | 54.03 (22.62) | 51.93 (22.83) | 51.84 (22.76) | 52.36 (22.09) | 51.06 (20.62) |
| Emotional functioning | 67.23 (20.29) | 69.63 (20.13) | 67.07 (20.57) | 67.00 (21.18) | 70.83 (19.26) | 67.94 (18.11) | 69.51 (20.13) |
| Social functioning | 64.52 (19.27) | 63.82 (16.41) | 62.08 (18.19) | 60.19 (18.48) | 62.52 (18.38) | 59.69 (18.60) | 57.78 (18.84) |
| Role functioning | 73.25 (23.74) | 75.28 (23.11) | 72.53 (22.64) | 70.40 (26.11) | 73.84 (22.33) | 72.12 (21.62) | 72.49 (22.13) |
Data are presented as mean (SD). Descriptive statistics were calculated using sample selection weights to adjust for the disproportionate stratified sampling design. CFQ-R = Cystic Fibrosis Questionnaire-Revised; HRQOL = health-related quality of life. See Table 1 legend for expansion of other abbreviation.