Table 5. Other questions.

Randomization (n=58)		n (%)
I think that it was acceptable for researchers to assign treatments at random like this in this study?	Agree	50 (86%)
	Neutral	3 (5%)
	Disagree	5 (9%)
Opt Out Bracelet (n=51)^a
People who heard about the study could call in and get a wrist band that would let people know that they didn't want to be included in this study if they had a seizure and were picked up by the ambulance. Is that something you would have done if you had known about the study?	Yes	4 (8%)
	No	47 (92%)
Community Consultation (n=57)
Do you think community consultation sounds like something important to do?	Yes	56 (98%)
	No	1 (2%)
What groups of people do you think researchers ought to talk to before doing studies like the ones we've been talking about?	People w/condition and their families	35 (57%)
	Medical community	10 (16%)
	General public	10 (16%)
	Other^b	25 (41%)
Public Disclosure (n-56)
Researchers also tried to inform communities about the RAMPART study so that they would know it was going on. Were you aware of the RAMPART study (the one in which you/your family member was enrolled) before you/your family member was brought to the hospital?	Yes	2 (4%)^c
	No	54 (96%)

Some interviewees refused or were unable to give an answer to this question.

Includes such groups as low socioeconomic s status persons, racial/ethnic minorities, community leaders, churches, elderly, people at risk for getting disease of interest, support/health groups, and research groups, among others.

1 subject was enrolled twice in RAMPART, 1 received a letter from epilepsy foundation.