Table 1.
Racial distribution of patient population reported by survey respondents (total=234 patients)
| Country (City) | Total | African- American |
African | Asian | Caucasian | Hispanic |
|---|---|---|---|---|---|---|
| UK (Manchester) | 56 | 2 | 0 | 3 | 51 | 0 |
| Netherlands (Amsterdam) | 17 | 1 | 0 | 0 | 16 | 0 |
| Mexico (Mexico, D.F.) | 21 | 0 | 0 | 0 | 0 | 21 |
| Croatia (Zagreb) | 7 | 0 | 0 | 0 | 7 | 0 |
| Italy (Padova) | 18 | 0 | 0 | 1 | 17 | 0 |
| Spain (Santiago de Compostela) |
2 | 0 | 0 | 0 | 2 | 0 |
| Germany (Düsseldorf) | 10 | 0 | 0 | 0 | 9 | 1 |
| South Africa (Cape Town) | 1 per year* | 0 | 1 | 0 | 0 | 0 |
| United States (Cincinnati) | No information | |||||
| United States (Salt Lake City) |
22 | 0 | 0 | 0 | 22 | 0 |
| United States (Boston) | 72 | 2 | 0 | 0 | 67 | 3 |
| Argentina (Buenos Aires) | 4 | 0 | 0 | 0 | 0 | 4 |
| Manila (Philippines) | 4 | 0 | 0 | 4 | 0 | 0 |
*
Total estimate of patients cannot be provided as most are lost to follow-up