Table 1.
Case ascertainment for benchmark operations in administrative vs. clinical registry data
| Operation | No. of Operations Identified in Clinical Registry |
No. of Operations Identified in Administrative Data |
% Difference in No. of Operations |
Sensitivity | Specificity | PPV | NPV |
|---|---|---|---|---|---|---|---|
| Method 1 – Individual ICD-9 Procedure Codes | |||||||
| VSD Repair | 5023 | 10266 | + 104.4% | 92.7% | 89.8% | 45.4% | 99.3% |
| TOF Repair | 3138 | 3903 | + 24.4% | 92.3% | 98.2% | 74.2% | 99.6% |
| CAVC repair | 2151 | 3676 | + 70.9% | 92.2% | 97.1% | 54.0% | 99.7% |
| ASO | 1449 | 2415 | + 66.7% | 97.5% | 98.3% | 58.5% | 99.9% |
| ASO + VSD repair | 575 | 829 | + 44.2% | 82.6% | 99.4% | 57.3% | 99.8% |
| Fontan | 3116 | 3488 | + 11.9% | 94.3% | 99.0% | 84.2% | 99.7% |
| Truncus repair | 456 | 602 | + 32.0% | 95.4% | 99.7% | 72.3% | 100.0% |
| Norwood | NA | NA | NA | NA | NA | NA | NA |
| Method 2 – Additional Inclusionary/Exclusionary ICD-9 Diagnosis & Procedure Codes | |||||||
| VSD Repair | 5023 | 5498 | + 9.5% | 74.6% | 96.8% | 68.2% | 97.7% |
| TOF Repair | 2817 | 3338 | + 18.5% | 85.5% | 98.4% | 72.2% | 99.3% |
| CAVC repair | 2079 | 3097 | + 49.0% | 84.4% | 97.7% | 56.7% | 99.4% |
| ASO | 1449 | 1394 | −3.8% | 81.4% | 99.6% | 84.6% | 99.5% |
| ASO + VSD repair | 575 | 777 | + 35.1% | 80.0% | 99.5% | 59.2% | 99.8% |
| Fontan | 3116 | 3055 | −2.0% | 86.3% | 99.4% | 88.0% | 99.2% |
| Truncus repair | 456 | 542 | + 18.9% | 86.6% | 99.8% | 72.9% | 99.9% |
| Norwood | 2181 | 2024 | −7.2% | 68.5% | 99.1% | 73.8% | 98.8% |
Reference for comparisons: clinical registry data. NA=No data are listed for the Norwood operation for Method 1, as there is no individual ICD-9 procedure code for the Norwood operation.