Table 2.

Results of the 2011 TIPQC Undetected Critical Congenital Heart Disease Registry

Case	Gender	Congenital heart disease	Age at diagnosis (days)	Location of presentation	Symptoms at presentation
1	Male	Hypoplastic left heart syndrome	3	PCP’s office, referred for NICU  admission	Tachypnea, cyanosis,  acidosis
2a	Male	Total anomalous pulmonary venous  return	9	PCP’s office, referred to emergency  department	Murmur, cyanosis
3a	Female	Tetralogy of Fallot, severe pulmonary  stenosis	14	PCP’s office, referred to cardiology  clinic	Murmur, cyanosis
4a	Male	Coarctation of the aorta, bicuspid  aortic valve	7	PCP’s office, referred for outpatient  echo	Murmur
5	Male	Coarctation of the aorta, bicuspid  aortic valve	7	Emergency department	Poor feeding, respiratory  distress
6	Male	Coarctation of the aorta, ventricular  septal defect	8	PCP’s office, referred for outpatient  echo	Murmur
7	Male	Coarctation of the aorta	9	Emergency department	Shock
8	Female	Coarctation of the aorta, ventricular  septal defect	9	Emergency department	Tachypnea
9	Male	Coarctation of the aorta, ventricular  septal defect	10	Emergency department	Respiratory distress,  acidosis
10a	Male	Coarctation of the aorta, ventricular  septal defect	14	Emergency department	Shock
11a	Female	Coarctation of the aorta, bicuspid  aortic valve	23	PCP’s office, referred to cardiology  clinic	Murmur, tachypnea
12a	Male	Coarctation of the aorta, bicuspid  aortic valve	30	Emergency department	Respiratory distress

TIPQC Tennessee Initiative for Perinatal Quality Care, PCP primary care provider, NICU neonatal intensive care unit

^aIncluded in the Middle Tennessee cohort