Table 1.
Demographics of Probands and Family Members
| Number of Consented Probands |
Number of Consented Family Members |
||
|---|---|---|---|
| All | 606a | 1670 | |
| Ethnicity | Not Hispanic | 529 | 1588 |
| Hispanic | 61 | 53 | |
| Unknown | 16 | 29 | |
| Race | White | 505 | 1334 |
| Black | 70 | 270 | |
| Asian | 5 | 3 | |
| More than one race | 8 | 19 | |
| Native American | 3 | 6 | |
| Pacific Islander | 0 | 0 | |
| Unknown | 15 | 38 | |
| Gender | Male | 354 | 769 |
| Female | 252 | 901 | |
| Age, first consent |
n, mean±SD, median (range) | 606, 47±14.6, 49 (0–82) |
1599, 35+20.7, 36 (0–90) |
| Current Age |
n, mean±SD, median (range) | 544, 53±14.6, 56 (2–88) |
1535, 44±19.6, 44 (1–101) |
| Age if deceased |
n, mean+SD, median (range) | 56, 52±17.8, 53 (11–80) |
63, 57±20.1, 58 (1–92) |
a
For 10 families, proband consent is still in process or was never accomplished but at least 1 family member is enrolled