Table 4.
Demographics of DMD population represented in the CTSR
| Country | Sites reporting DMD patients | DMD patients <18 | DMD patients 18+ | Total DMD patients | Avg <18 pats/DMD site | Avg 18+ pats/DMD site | Avg pats/DMD site | Sites reporting only DMD Pats <18 | Sites reporting only DMD Pats 18+ | Sites reporting patients both <18 and 18+ |
|---|---|---|---|---|---|---|---|---|---|---|
| United States |
29 |
2177 |
600 |
2777 |
75 |
21 |
96 |
1 |
0 |
28 |
| United Kingdom |
29 |
1213 |
301 |
1514 |
42 |
10 |
52 |
8 |
7 |
14 |
| Germany |
46 |
887 |
240 |
1127 |
19 |
5 |
25 |
22 |
7 |
17 |
| Italy |
15 |
557 |
238 |
795 |
37 |
16 |
53 |
4 |
0 |
11 |
| Canada |
9 |
387 |
71 |
458 |
43 |
8 |
51 |
1 |
0 |
8 |
| Australia |
3 |
407 |
19 |
426 |
136 |
6 |
142 |
1 |
0 |
2 |
| France |
14 |
159 |
214 |
373 |
11 |
15 |
27 |
1 |
7 |
6 |
|
Countries reporting between 100–250 DMD patients* |
41 |
1798 |
442 |
2240 |
61 |
20 |
81 |
15 |
2 |
24 |
|
Countries reporting less than 100 DMD patients** |
22 |
599 |
78 |
677 |
27 |
3 |
30 |
10 |
0 |
12 |
| Total | 208 | 8184 | 2203 | 10387 | 39 | 9 | 48 | 63 | 23 | 122 |
*Belgium, Czech Republic, Denmark, Hungary, India, Israel, Japan, Netherlands, Poland, Russia, Spain, Switzerland, Turkey.
**Austria, Brazil, Bulgaria, Chile, China, Croatia, Finland, Indonesia, Moldova, Norway, Pakistan, Portugal, Romania, Serbia, Slovenia, Sweden, Ukraine.