| “Crushing pain” |
Physical sensation of “crushing” of a joint/limb |
Mostly in hands, back. May come gradually or brutally. May be accompanied with fear for one’s body integrity. Deep pain |
“As if my hand was crushed, totally destroyed”. “A kind of liquefaction, as if your joint or cartilage was being liquefied” (one person only); “Like a hammer blow”
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| “Twisted fingers” |
Acute pain in the fingers, with a feeling / physiological consequence of them being “twisted” |
May affect the thumb only. |
“Twisted fingers: no more rings for me”. “My thumb: I can’t open it anymore” |
| “Prickling” |
Low intensity pain, more of an intense discomfort – a prickling sensation |
Rhythmic pain (slow or fast). Close to numbness. Irregular, ‘illogical” occurrences, day or night. Larger impact zones |
“The 1001 stings”; “There is a rhythm to it, it can be fast or slow”. “A numbness, you don’t know what to do”; “like harassment”. “Comes back regularly, maybe because of a particular position?”
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| “Burning pain” |
Intense, acute pain akin to burning sensation |
Rare (one occurrence). Deep pain (bone) |
“As if I were on the grill. Two grills inside, on both sides of my hips. That’s what I feel right now; a deep burning. The pain is deep inside; I don’t move much. If I turn round to watch you, my neck hurts; it doesn’t hurt if I do not move”
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| Neck pain |
Described as similar to migraine. Or: stabbing in the neck. |
Location: back of the head/ shoulder paralysis; Associated headache; rhythmic pain. Or: stabbing pain in the neck + ravaging feeling |
“I stay in the dark, a small pillow under the neck. My head aches but at the back of my head”. “If I turn my head – frightening, as if there were gravel inside”
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