Table A1.
Name of Survey | No. of Items | Focus of Assessment |
---|---|---|
Demographics | 10 | Gender; race; ethnicity; education; marital status; employment; family income, size, and composition |
Trust in Doctors | 10 | Minority attitudes toward health care providers |
Characteristics of Medical Care | ||
Racism in Medical Care | 4 | Administered only to African-American participants to assess beliefs regarding the prevalence of racism among health care professionals that influence trust |
Medical Mistrust Index | 5 | Attitudes of trust toward hospitals and institutions (ie, v health care providers) |
Attitudes Towards Trials | 6 | Attitudes toward clinical trials and willingness to participate in clinical trials |
Social Support Inventory | 37 | Extent to which patients saw the overall clinical care team as providing nondirective versus directive support* |
Center for Epidemiologic Studies Depression Scale† | 20 | Depressive symptomalogy and decision making |
Quality of life survey: FACT–General‡ | 27 | Multidimensional quality of life with subscales for physical, social/familial, emotional, and functional well-being |
Abbreviation: FACT, Functional Assessment of Cancer Therapy.
Nondirective support focuses on accepting recipients' choices and feelings without “taking over”; directive support prescribes or takes control of recipient's tasks, issuing “correct” choices and feelings.
Included because of the prevalence of depression as comorbidity for patients with cancer and a potential influence in decisions about enrolling in clinical trials.
FACT includes four separate surveys targeted specifically for individual cancer types: FACT-B (breast), FACT-C (colorectal), FACT-L (lung), FACT-P (prostate).