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. 2013 Oct 15;9(6):294–299. doi: 10.1200/JOP.2013.000982

Table A1.

Data Surveys

Name of Survey No. of Items Focus of Assessment
Demographics 10 Gender; race; ethnicity; education; marital status; employment; family income, size, and composition
Trust in Doctors 10 Minority attitudes toward health care providers
Characteristics of Medical Care
    Racism in Medical Care 4 Administered only to African-American participants to assess beliefs regarding the prevalence of racism among health care professionals that influence trust
    Medical Mistrust Index 5 Attitudes of trust toward hospitals and institutions (ie, v health care providers)
Attitudes Towards Trials 6 Attitudes toward clinical trials and willingness to participate in clinical trials
Social Support Inventory 37 Extent to which patients saw the overall clinical care team as providing nondirective versus directive support*
Center for Epidemiologic Studies Depression Scale 20 Depressive symptomalogy and decision making
Quality of life survey: FACT–General 27 Multidimensional quality of life with subscales for physical, social/familial, emotional, and functional well-being

Abbreviation: FACT, Functional Assessment of Cancer Therapy.

*

Nondirective support focuses on accepting recipients' choices and feelings without “taking over”; directive support prescribes or takes control of recipient's tasks, issuing “correct” choices and feelings.

Included because of the prevalence of depression as comorbidity for patients with cancer and a potential influence in decisions about enrolling in clinical trials.

FACT includes four separate surveys targeted specifically for individual cancer types: FACT-B (breast), FACT-C (colorectal), FACT-L (lung), FACT-P (prostate).