Table 1.

Demographics and questionnaire response by centre.

Demographics	N = 298	n(%), M ± SD (range)
	Age	62.09 ± 11.01
Sex	62.4% male
Questionnaires completed at home	278 (93.3%)
Disease duration (years)	2.69 ± 3.54
ALSFRS-R score	32.6 (12–48)
Patients recruited from each research centre	Liverpool	110 (36.9%)
Sheffield	38 (12.8%)
Oxford	39 (13.1%)
Salford	76 (25.5%)
Preston	35 (11.7%)