Table 2.
Percentage of studies | Data source | Data type | Population coverage | Patient data | Health services data | |||||
---|---|---|---|---|---|---|---|---|---|---|
Date of diagnosis | Stage at diagnosis | Surgery | Radiotherapy | Chemotherapy | Post-diagnosis surveillance | End of life | ||||
40% | SEER–Medicare | Registry linked to Medicare claims | ≥65 y diagnosed and treated in SEER regions | √ | √ | √ | √ | √ | √ | √ |
10% | SEER | Registry | 17 US regions | √ | √ | √ | √ | |||
10% | State registry linked† | Registry linked to supplemental data source | State | √ | √ | √ | √ | √ | √ | √ |
8% | State registry alone† | Registry | State | √ | √ | √ | √ | √ | √ | √ |
7% | HCUP–NIS | Hospital discharge data | Nation | √ | ||||||
7% | Special study (eg, CanCORS)† ‡ | Varies | Varies | √ | √ | √ | √ | √ | √ | √ |
5% | Single institution† | Hospital medical records | Institution | √ | √ | √ | √ | √ | √ | √ |
5% | Medical claims alone | Medical claims | Medical insurance beneficiaries | √ | √ | √ | √ | √ | ||
3% | NCI Patterns of Care | Registry linked to physician surveys | 17 US regions | √ | √ | √ | √ | √ | ||
3% | NCDB | Nation | √ | √ | √ | √ | √ | |||
3% | NCCN CRC outcomes database | Chart review | Patients treated at 8 NCI comprehensive cancer centers | √ | √ | √ | √ | √ |
* CanCORS = Cancer Care Outcome Research and Surveillance Consortium; CRC = colorectal cancer; HCUP–NIS = Healthcare Cost and Utilization Project–Nationwide Inpatient Sample; NCCN = National Comprehensive Cancer Network; NCDB = National Cancer Data Base; NCI = National Cancer Institute; SEER = Surveillance, Epidemiology, and End Results.
† Availability of health services data may vary by state, study, or institution.
‡ Availability of patient data may vary by study.