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. 2013 Aug 16;2013(46):13–35. doi: 10.1093/jncimonographs/lgt007

Table 2.

Characteristics of data sources used to measure patterns of colorectal cancer care in the United States*

Percentage of studies Data source Data type Population coverage Patient data Health services data
Date of diagnosis Stage at diagnosis Surgery Radiotherapy Chemotherapy Post-diagnosis surveillance End of life
40% SEER–Medicare Registry linked to Medicare claims ≥65 y diagnosed and treated in SEER regions
10% SEER Registry 17 US regions
10% State registry linked† Registry linked to supplemental data source State
8% State registry alone† Registry State
7% HCUP–NIS Hospital discharge data Nation
7% Special study (eg, CanCORS)† ‡ Varies Varies
5% Single institution† Hospital medical records Institution
5% Medical claims alone Medical claims Medical insurance beneficiaries
3% NCI Patterns of Care Registry linked to physician surveys 17 US regions
3% NCDB Nation
3% NCCN CRC outcomes database Chart review Patients treated at 8 NCI comprehensive cancer centers

* CanCORS = Cancer Care Outcome Research and Surveillance Consortium; CRC = colorectal cancer; HCUP–NIS = Healthcare Cost and Utilization Project–Nationwide Inpatient Sample; NCCN = National Comprehensive Cancer Network; NCDB = National Cancer Data Base; NCI = National Cancer Institute; SEER = Surveillance, Epidemiology, and End Results.

† Availability of health services data may vary by state, study, or institution.

‡ Availability of patient data may vary by study.