Table 2. Item statistics (n = 121).

Needsa	Importance		Fulfillment
	Mean ± sd	Corrected Item-Total Correlation	Mean ± sd	Corrected Item-Total Correlation
1. To participate in my child's care	4.87 ± 0.53	.331	4.31 ± 0.91	.598
2. To make decisions for my child	4.88 ± 0.37	.475	4.36 ± 0.91	.537
3. To be with my child whenever I want	4.93 ± 0.30	.350	4.61 ± 0.74	.491
4. To talk to my child	4.88 ± 0.41	.391	4.70 ± 0.73	.296
5. To touch my child	4.95 ± 0.28	.386	4.74 ± 0.65	.430
6. To hold my child	4.83 ± 0.55	.259	4.12 ± 1.26	.293
7. To protect my child	4.92 ± 0.43	.356	4.15 ± 1.22	.583
8. To have confidence in the professionals caring for my child	4.97 ± 0.18	.235	4.31 ± 0.96	.659
9. To know that my child got the best possible care	4.98 ± 0.12	.300	4.30 ± 1.06	.577
10. To know my child's pain was adequately treated	4.94 ± 0.26	.083	4.31 ± 0.98	.472
11. For my child's doctor to be available to me	4.88 ± 0.39	.340	4.13 ± 0.98	.673
12. To get complete information about my child	4.93 ± 0.28	.407	4.11 ± 1.11	.611
13. For my child's nurse to be available to me	4.93 ± 0.25	.388	4.66 ± 0.67	.532
14. To feel free to ask questions	4.86 ± 0.41	.416	4.56 ± 0.75	.520
15. To have things explained in words that I can understand	4.86 ± 0.45	.354	4.39 ± 0.84	.552
16. For hospital staff to speak honestly to me	4.93 ± 0.30	.368	4.23 ± 0.95	.659
17. For guidance from hospital staff about what to expect	4.85 ± 0.44	.452	4.10 ± 1.05	.659
18. To have hospital staff available to me	4.79 ± 0.52	.485	4.53 ± 0.68	.680
19. To understand the roles of different people caring for my child	4.69 ± 0.63	.535	4.38 ± 0.81	.589
20. To have hospital staff work as a team	4.85 ± 0.42	.548	4.51 ± 0.86	.552
21. For my authority as a parent to be respected	4.82 ± 0.53	.563	4.48 ± 0.90	.637
22. To not feel blamed for my child's condition	4.46 ± 1.10	.549	4.46 ± 1.03	.495
23. To feel welcome in the pediatric intensive care unit	4.79 ± 0.51	.516	4.60 ± 0.78	.614
24. To have enough space for my family	4.69 ± 0.65	.560	4.12 ± 1.06	.434
25. For the hospital to be clean	4.90 ± 0.32	.417	4.53 ± 0.83	.293
26. To feel safe in the hospital	4.81 ± 0.45	.498	4.74 ± 0.63	.361
27. To have food available close by	3.98 ± 1.31	.311	4.37 ± 0.84	.258
28. To be able to take care of my personal needs (e.g., showering, changing clothes, brushing teeth)	3.94 ± 1.28	.303	4.14 ± 1.23	.334
29. To have a place to sleep in the hospital	4.40 ± 1.10	.292	3.97 ± 1.23	.307
30. To have a chapel available	3.69 ± 1.49	.441	4.48 ± 0.99	.313
31. To have childcare (babysitting) at the hospital	2.35 ± 1.60	.404	3.16 ± 1.54	.259
32. To be able to sleep in my child's room	4.59 ± 1.04	.322	3.67 ± 1.54	.472
33. To have help keeping my life going (e.g., groceries, laundry, mail)	3.16 ± 1.72	.391	3.17 ± 1.54	.362
34. To have enough time to make decisions	4.70 ± 0.62	.399	4.05 ± 1.10	.462
35. To be told that my child was likely to die	4.64 ± 0.80	.222	3.92 ± 1.33	.360
36. To have family and friends with me at the hospital	4.74 ± 0.54	.468	4.64 ± 0.80	.396
37. To be supported by my family and friends	4.83 ± 0.44	.563	4.68 ± 0.73	.542
38. To have others understand my pain	4.21 ± 1.25	.413	4.02 ± 1.16	.623
39. To be treated with compassion by hospital staff	4.71 ± 0.67	.588	4.60 ± 0.81	.620
40. To talk to a chaplain	3.64 ± 1.56	.466	4.54 ± 1.02	.302
41. To not feel judged by hospital staff	4.20 ± 1.35	.515	4.45 ± 1.07	.473
42. For my culture to be respected	3.36 ± 1.76	.609	4.56 ± 0.98	.241
43. For my religion to be respected	3.91 ± 1.57	.544	4.66 ± 0.90	.305
44. For my child to be treated with dignity	4.95 ± 0.25	.464	4.68 ± 0.73	.563
45. To have privacy	4.62 ± 0.74	.403	4.47 ± 0.94	.465
46. To have time alone with my child	4.82 ± 0.46	.449	4.55 ± 0.91	.436
47. To say goodbye to my child	4.95 ± 0.28	.446	4.65 ± 0.87	.445
48. For my child to be called by name	4.74 ± 0.73	.568	4.85 ± 0.52	.414
49. To be there when my child died	4.93 ± 0.42	.357	4.74 ± 0.82	.357
50. For hospital staff to be respectful at the time of my child's death	4.89 ± 0.48	.462	4.80 ± 0.55	.505
51. For my child's death to be treated as a sacred time	4.87 ± 0.51	.346	4.73 ± 0.65	.459
52. To not feel rushed when my child died	4.88 ± 0.51	.465	4.49 ± 1.02	.366
53. To have enough time to gather family	4.79 ± 0.66	.306	4.64 ± 0.88	.384
54. To have a keepsake of my child	4.81 ± 0.59	.224	4.73 ± 0.84	.249
55. To express emotions in my own way	4.58 ± 0.96	.612	4.68 ± 0.73	.422
56. For hospital staff to acknowledge my loss	4.37 ± 1.08	.649	4.64 ± 0.74	.581
57. To have contact with hospital staff after I leave	3.70 ± 1.43	.356	3.80 ± 1.33	.378
58. To give feedback about my hospital experiences	3.87 ± 1.37	.533	4.04 ± 1.24	.434
59. To talk about my child	4.74 ± 0.75	.395	4.29 ± 1.17	.500
60. To remember my child in family traditions and holidays	4.71 ± 0.75	.459	4.23 ± 1.07	.448
61. To talk to other parents whose children died	3.73 ± 1.39	.451	3.36 ± 1.51	.315
62. To understand the medical cause of my child's death	4.74 ± 0.72	.295	3.55 ± 1.51	.398
63. To feel that my child's life had meaning	4.88 ± 0.39	.479	4.30 ± 1.16	.572
64. To feel grateful for my child's life	4.92 ± 0.35	.376	4.48 ± 0.97	.489
65. To feel angry about my child's death	3.74 ± 1.46	.317	3.92 ± 1.21	.344
66. To blame someone for my child's death	2.03 ± 1.46	.182	2.92 ± 1.62	.298
67. To find meaning in my loss	4.56 ± 0.94	.483	3.40 ± 1.48	.450
68. To have hope for the future	4.66 ± 0.74	.392	3.71 ± 1.31	.407

^aItems are listed in the order presented to respondents.