Table 4.

Family Conference Documentation: Discussion of Future Management

Discussion topic	Explanation	Occurrence in FC (n=60)
General plans
Goals of care	Discussion of goals in order to define a treatment plan	14 (23%)
Discharge planning	Discussion of any discharge plans	9 (15%)
Diagnostic testing	Discussion of tests that may need to be performed	3 (5%)
Use of mechanical therapies
Tracheostomy	Discussion or decision about tracheostomy	12 (20%)
Gastrostomy tube	Discussion or decision about G-tube placement	1 (2%)
Chronic ventilation	Discussion or decision about initiation of chronic ventilation	7 (12%)
ECMO	Discussion or decision about ECMO	1 (2%)
Limitation of therapies
DNR/DNI	Discussion or decision about DNR/DNI limitations	25 (42%)
Withdrawing life-sustaining therapies	Discussion or decision about withdrawing life-sustaining therapies	9 (15%)
End-of-life care management
Death	Discussion of the dying process and parents' wishes regarding their child's death	17 (28%)
Comfort care	Defining comfort care, what the family expects from comfort care, and what the health care team can offer	18 (30%)
Organ donation	Discussion or decision about the option of organ donation	1 (2%)

DNR/DNI, do not resuscitate/do not intubate; ECMO, extracorporeal membrane oxygenation; FC, family conference; G-tube, gastrostomy tube.