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. Author manuscript; available in PMC: 2014 Dec 1.
Published in final edited form as: Pain. 2013 Aug 28;154(12):10.1016/j.pain.2013.08.024. doi: 10.1016/j.pain.2013.08.024

Table 1.

Study Sample Descriptions

Sample A: Cross-sectional Survey Sample B: Score Linking Survey Sample C: Pain observations Study

Recruitment Participants from previous UW or UNC studies, patients at UW Pain Clinic, flyers at other Seattle clinics, and web posting on UW website Random subset of PwP who participated in either Sample A or Sample C and indicated interest in participating in future research studies Participants from Sample A, clinician referrals, advertisements, flyers, web postings

Inclusion/Exclusion Criteria
 PwP Self-report of at least one of 3 target clinical conditions; ≥ 18 years of age; read/understand English; SO who spends ≥ 7 hours/week with them and willing to participate; average pain in past week ≥ 3 (0–10 scale), persisting ≥ 6 months; and able to walk (with or without assistive device). Individuals who used wheelchairs most or all of the time were excluded because use of a wheelchair could impact how and what pain behaviors are displayed. Same as for Sample A except no SO reporting was required. Same as for Sample A except that self-reported average 7 day pain score required to be ≥ 3 (0–10 scale), and pain reported to affect walking, sitting or reclining. Participants were not required to have a SO.

 SOs Nominated by PwP and willing to participate. n/a n/a

Number of PwP and SOs by Clnical Condition
 Arthritis N= 226 PwP, N=206 SOs N=161 PWP N=26 PwP
 Back Pain N=225 PwP, N=209 SOs N=154 PWP N=30 PwP
 Multiple Sclerosis N=210 PwP, N=203 SOs N=158 PWP N=30 PwP

Data collected
 PwP Demographics, clinical status, candidate PaB-SR items, other pain measures Subset of PaB-SR items and PROMIS items that had the same item content but different response scales. Demographics, clinical status, current pain (0–10), candidate PaB-SR items, other pain measures

 SOs Demographics, parallel items to candidate PaB-SR items, UAB Pain Behavior Scale n/a n/a

How data were used Item-level validity, score level validity Align PaB-SR scores to PROMIS metric Item-level validity, score level validity

UW = University of Washington, Seattle; UNC = University of North Carolina, Chapel Hill; PwP = participants with pain; SOs = significant others; PaB-SR = Pain Behaviors Self Report