Table 5.
Characteristics of questionnaire respondents: n (%) or mean (±SD)
| R* (n = 24) | T0* (n = 32) | T1* (n = 32) | p; Cohen’s d** | |
|---|---|---|---|---|
|
Background | ||||
|
Age (at time of questionnaire) [15-29]^ |
20.8 (±3.2) |
19.1 (±2.4) |
|
|
|
Gender (male) |
8 (33.3) |
17 (53.1) |
|
|
|
Educational level (high) |
8 (50.0)1 |
11 (39.3)4 |
|
|
|
Age at diagnosis |
|
|
|
|
|
0 years |
11 (45.8) |
15 (46.9) |
|
|
|
1–5 years |
3 (12.5) |
8 (25.0) |
|
|
|
6–12 years |
5 (20.8) |
5 (15.6) |
|
|
|
13–16 years |
5 (20.8) |
4 (12.5) |
|
|
|
Treatment type |
|
|
|
|
|
Pre-dialysis |
- |
2 (6.3) |
|
|
|
Haemodialysis |
4 (16.7) |
6 (18.8) |
|
|
|
Peritoneal dialysis |
- |
- |
|
|
|
Kidney transplant |
20 (82.3) |
18 (56.3) |
|
|
|
Other |
- |
6 (18.8) |
|
|
|
Limitations in mobility[6-18]^ |
7.9 (±2.0)2 |
7.6 (±2.0)5 |
|
|
|
Self-management |
|
|
|
|
|
General self-efficacy[10-40]^ |
27.7 (±3.0) |
30.7 (±4.5) |
32.1 (±4.7) |
<.05; .31 |
|
Disease-related self-efficacy |
|
|
|
|
| Coping domain [4-16]^ |
14.3 (±1.9) |
13.8 (±2.3)7 |
13.7 (±2.0)2 |
ns |
| Knowledge domain [6-24]^ |
22.0 (±2.1) |
21.7 (±2.6)9 |
|
|
| Skills for hospital consultations [6-24]^ |
21.3 (±3.5) |
20.8 (±3.2)11 |
21.5 (±2.5)10 |
ns |
|
HRQoL [0–100]^ |
|
|
|
|
| General HRQoL |
73.9 (±11.4) |
72.4 (±17.0)2 |
72.1 (±14.2) |
ns |
|
Independence domain |
82.9 (±14.0) |
78.1 (±13.2) |
83.9 (±15.0) |
<.01; .44 |
|
Emotion domain |
63.2 (±13.5) |
71.1 (±23.3)5 |
71.3 (±18.4)2 |
ns |
|
Social inclusion domain |
75.7 (±14.1) |
74.1 (±18.9)6 |
70.5 (±15.8) |
<.05; -.19 |
|
Social exclusion domain |
77.4 (±18.8) |
77.1 (±17.6)5 |
75.2 (±18.2)2 |
ns |
|
Physical domain |
68.2 (±15.9) |
60.6 (±19.4) |
60.1 (±16.4)2 |
ns |
|
Medication domain |
77.9 (±16.4) |
71.0 (±20.4)2 |
72.2 (±21.7)2 |
ns |
|
Autonomy in social participation (yes independent) |
|
|
|
|
|
Finances |
14 (58.3) |
3 (15.0)5 |
|
|
|
Employment |
7 (29.2) |
3 (15.0)6 |
|
|
|
Living |
6 (25.0) |
3 (15.0)6 |
|
|
|
Relationships |
15 (65.2)2 |
16 (80.0)6 |
|
|
|
Sexuality |
11 (50.0)3 |
9 (52.9)10 |
|
|
|
Transportation |
22 (100)3 |
14 (70.0)6 |
|
|
| Leisure | 17 (70.8) | 13 (68.4)5 | ||
*R = retrospective; T0 = pre-camp; T1 = post-camp.
^Theoretical range.
**Wilcoxon Signed Ranks Test (paired) for differences between T0 en T1 measurements, and Cohen’s d for effect sizes.
Missing values: 1n = 8, 2n = 1, 3n = 2, 4n = 4, 5n = 13, 6n = 12, 7n = 3, 8n = 1, 9n = 22, 10n = 21, 11n = 9.