Table 2.
Parent and adolescent self-report measurement tools and questions at each time point
| |
|
Time point |
||
|---|---|---|---|---|
| Measurement tools/questions | Baseline | Post | Follow-up | |
|
Demographics |
|
|
|
|
| Adolescent characteristics |
Age, gender, postcode, family Characteristics, living arrangements, education, age at diagnosis, family history of diabetes, diabetes treatment regime, number of hospitalizations, general medical history (Other Acute or chronic health conditions) |
✓ |
|
|
| Parent characteristics |
Age, gender, postcode, education, marital status, and employment |
|
|
|
|
Process evaluation |
|
|
|
|
| Satisfaction with intervention^ |
6 item assessment rating the intervention with 4 additional open-ended questions regarding most liked, least liked, suggestions on improvements, and other comments |
|
✓ |
|
|
Primary outcome |
|
|
|
|
|
Adolescent |
|
|
|
|
| Mental health |
Children's depression inventory -short form (CDI -S) [58] |
✓ |
✓ |
✓ |
| |
Revised children's manifest anxiety Scale (RCMAS -S) [59] |
✓ |
✓ |
✓ |
|
Secondary outcomes |
|
✓ |
✓ |
✓ |
|
Adolescent |
|
|
|
|
| Behavioral |
Self-care inventory (SCI-R) [60] |
✓ |
✓ |
✓ |
| |
Adolescent risk taking questionnaire (ASQ) [61] |
✓ |
✓ |
✓ |
| Psychosocial |
Diabetes quality of life survey for youths (DQoLY-S) [62] |
✓ |
✓ |
✓ |
| |
Child health questionnaire: parent form 50 (CHQ-PF50) [63] |
✓ |
✓ |
✓ |
| |
Stanford diabetes self-efficacy scale (SDSES) [64] |
✓ |
✓ |
✓ |
| |
Benefit burden scale for children (BBSC) [65] |
✓ |
✓ |
✓ |
| |
Adolescent resilience scale (ARS) [66] |
✓ |
✓ |
✓ |
| Metabolic |
HbA1c |
✓ |
|
✓ |
|
Parent |
|
|
|
|
| Psychosocial |
Depression, anxiety & stress scale (DASS) [67] |
✓ |
✓ |
✓ |
| Fatigue assessment scale (FAS) [68] |
✓ |
✓ |
✓ |
|
| Parent sense of competence scale (PSoC) [69] |
✓ |
✓ |
✓ |
|
| Parent experience of child illness (PECI) [70] |
✓ |
✓ |
✓ |
|
|
Family |
|
|
|
|
| Communication |
Family problem solving communication index (FPSCI)* [71] |
✓ |
✓ |
✓ |
| Family management measure (FaMM) [72] |
✓ |
✓ |
✓ |
|
| Reduced conflict |
Diabetes family conflict scale (DFCS)* [73] |
✓ |
✓ |
✓ |
| Diabetes responsibility |
Diabetes family responsibility questionnaire (DFRQ)* [74] |
✓ |
✓ |
✓ |
|
Mediators and moderators |
|
|
|
|
| Perceived social support |
Adolescent satisfaction with support from parents, boyfriend/girlfriend, friends, teachers, employers, diabetes specialists |
✓ |
✓ |
✓ |
| Other activities | Engagement in employment and extra-curricular activities. | ✓ | ||
^Administered to intervention group only.
*Administered to parents and adolescents.