Table 4.
Problem | n | Burden Scores | |||||||
---|---|---|---|---|---|---|---|---|---|
Bowel | Calcinosis | Eating | Hand | Pain | Breath* | Skin | Sleep | ||
Bowel | 44 | 5.33 | 1.8 | 3.8 | 5.72 | 6.01 | 4.4 | 5.1 | 4.8 |
Calcinosis | 16 | 5.3 | 5.4 | 4.6 | 6.62 | 6.81 | 4.0 | 6.2 | 6.33 |
Eating | 39 | 4.6 | 2.0 | 5.0 | 5.82 | 6.01 | 4.4 | 5.23 | 4.6 |
Hand | 55 | 3.9 | 1.6 | 3.3 | 5.71 | 5.62 | 3.6 | 4.63 | 4.2 |
Pain | 57 | 4.0 | 1.5 | 3.4 | 5.42 | 5.61 | 3.7 | 4.73 | 4.4 |
Breath* | 41 | 4.6 | 1.4 | 4.1 | 5.62 | 5.81 | 5.43 | 5.1 | 4.5 |
Skin | 54 | 4.1 | 1.5 | 3.4 | 5.51 | 5.51 | 4.0 | 5.03 | 4.2 |
Sleep | 45 | 4.5 | 1.9 | 3.8 | 5.82 | 6.31 | 4.3 | 5.2 | 5.53 |
Shortness of breath.
Highest burden score per problem area.
Second-highest burden score per problem area.
Third-highest burden score per problem area.