Table 4.
Characteristics of the identified patient-reported outcomes.
| Abbr. | Patient-reported outcomes | Content | Items | Response options | Time frame |
|---|---|---|---|---|---|
| ADAPT | Assessment of the Demand for Additional Psychological Treatment58 | Need for psychological treatment | 12 | Visual analog scales | Present |
| BDI-II | Beck Depression Inventory-II25 | Depression | 21 | 4 statements: increasing severity | Past, present, future |
| CPWDQ | Crohn's disease Perceived Work Disability Questionnaire59 | Work capacity | 14 | 4 statements: increasing frequency (1 = never, 4 all of the time) | Last year |
| DS-14 | Type-D Scale60 | Negative affectivity & social inhibition | 14 | Verifying statements (0 = false to 4 = true) | Present |
| EQ-5D | EuroQuoL Health questionnaire26 | Health status | 5 | Statement (no, some, extreme problems) & visual analog scale | Present |
| ESSI | ENRICHD Social Support Instrument61 | Extent of social Support | 7 | Question 1–6 (None, a little, some, most or all of the time), Question 7 (yes/no) | Present |
| FIQL | Fecal Inconsistency Quality of life Scale62 | Health related Quality of Life | 29 | Different Likert scales | Present |
| HADS | Hospital Anxiety and Depression Scale63 | Anxiety, depression | 14 | Frequency: 4-point Likert scale (0 = not at all, 4 = definitely) | Present |
| IBDQ-32 | Inflammatory Bowel Disease Questionnaire28 | Health related quality of life | 32 | 7 point Likert scale (1 = significant impairment, 7 = no impairment) | 2 weeks |
| IBD-SES | Inflammatory Bowel Disease Self-efficacy Scale33 | Self-efficacy | 29 | 10 point Likert scale (1 = not sure at all, 10 totally sure) | Present |
| LOT-R | Life Orientation Test-Revised34 | Optimism | 8 | 5 point Likert scale (0 = strongly disagree, 4 strongly agree) | Present |
| PAM-13 | Patient-Activation Measure Short Form64 | Health management skills, knowledge, confidence, motivation | 13 | 5 point Likert scale (0 = strongly disagree, 4 strongly agree; 0 = poor, 4 = excellent) | Present |
| PSQ -V, -G |
Perceived Stress Questionnaire32 recent form (PSQ-V)/general form (PSQ-G) covering the | Perceived stress | 30 | 4-point scale on frequency (1 = almost never, 4 = usually) | Past month/past 2 years |
| PSQ-R | Perceived Stress Questionnaire Reconsidered65 | Perceived stress | 20 | 4-point scale on frequency (1 = almost never, 4 = usually) | Present |
| RFIPC | Rating Form of Inflammatory Bowel Disease Patient Concerns66 | Worries, concerns regarding IBD | 25 | Visual analog scale (0 = Not at all, 100 = A great deal) | Present |
| SF-36 | Short Form 36 Health survey27 | Health related quality of life | 36 | Different response scales | 4 weeks |
| SIBDQ | Short Inflammatory Bowel Disease Questionnaire29 | Quality of life | 10 | 7-point Likert scale on frequency (1 = all of the time, 7 = none of the time) | 2 weeks |
| STAI | State-Trait Anxiety Inventory67 | Anxiety about an event, and trait anxiety | 40 | Intensity 4-point Likert scale (1 = not at all, 4 very) | Present |