Table 1.
Characteristics of the 502 patients and their key relatives
| Patients (N = 502) | Key relatives (N = 502) | |
|---|---|---|
| Sex, N (%) | ||
| Male | 484 (96) | 74 (15) |
| Female | 18 (4) | 428 (85) |
| Age, mean (SD) years | 12.8 (5.6) | 43.4 (7.4) |
| Marital status, N (%) | ||
| Single | 502 (100) | 61 (12) |
| Cohabitant/spouse | 0 | 441 (88) |
| Attendance | Degree | |
|---|---|---|
| Education, N (%) yes | 430 (86) | 502 (100) |
| Pre-school | 50 (12) | – |
| Primary school | 148 (34) | 35 (7) |
| Secondary school | 90 (21) | 184 (37) |
| High school | 127 (29) | 219 (44) |
| University | 17 (4) | 64 (12) |
| Currently employed, N (%) yes | 7 (1) | 264 (53) |
| Relationship with the patient, % | ||
| Mother | – | 424 (84) |
| Father | – | 70 (14) |
| Other | – | 8 (2) |
| Duration of symptoms, mean (SD) years | 8.9 (5.5) | – |