Table 3. Key information for informed consent.

• Location of biological materials collection

• Type of biological materials taken for purpose of research or a biobank creation

• Purpose for which biological materials will be used

• Solidarity and voluntary character of the participation

• Right to withdraw consent to the use of samples

• Right to withdraw consent to the use of data

• Authorisation to be recontacted

• Authorisation to contact family members

• Duration of the storage

• Communication of research results

• Rules to protect subjects' privacy

• Independent ethics committee review

• Information on samples property

• Information on intellectual property rights and patents

• Prohibition of the commercialisation of samples and related data

• Benefit sharing

• Transfer of samples and related data to other research institutes

• Access to samples and data from external researchers

• Destiny of samples and data after donor's death

• Destiny of samples and data in case of advanced research conclusion

Options chosen by >75% of ECs are in bold; options chosen by 51–75% of ECs are underlined; options chosen by 26–50% of ECs are in normal type; and options chosen by <25% of ECs are in italics.