Table 4.

Deterrents and Risks

Deterrent	Group A	Group B	Example Quote
Insufficient prior data	3 (50%)	5 (50%)	“When you're in the middle of this, you just want someone to tell you they've got something that can fix it, and it's going to make things better. And the numbers were a huge thing for us.”
Unnecessary procedure	2 (33%)	2 (20%)	“She's just gone through, I feel like, so much, that if you don't know it's going to work, and if you know you're going to get a transplant anyway, then I would rather kind of just…”
Protocol preference for organ Tx	0	2 (20%)	“Is that a last ditch effort to save a life or? …because it sounds like they would rather have the solid organ.”
Disillusioned with prior research	0	1 (10%)	“There was some other things that they thought they could do to take care of our kids, and they'd be like, `yup, we'll have it in a month or two, a year from now we're going to be ready to roll, and we got kind of excited, but we were always let down. That was always what happened.”
Risks
Unknown procedure	4 (66%)	8 (80%)	“I don't think the procedure itself sounds that scary, given what we've been through, it's just the unknown of it.”
Radiation	2 (33%)	6 (60%)	“Also, the radiation part of it…I have more questions about why that's needed and how that affects the cells.”
Hepatocytes not working	4 (66%)	1 (10%)	“And the cons with the…cons would be of course, if it doesn't work, then we still have to do the liver.”
Surgical Risk	3 (50%)	0	“It seemed like the …you know, the procedure itself was the biggest risk.”
Infection	2 (33%)	0	“I mean I wasn't really worried about anything…you know, just possible infections or stuff like that.”
Unknown Source of Hepatocytes	0	4 (40%)	“And also, they said they get cells from more than one donor, so I wonder how that plays, like how that works, because I worry about having more than one cell.”
Immunosuppression	0	1 (10%)	“Maybe the anti-rejection and other illnesses that they would pick up that would cause death.”