Table 1.

Design of transition readiness assessment tools

TOOL	TOOL
	Disease-specificity	Number of domains	Number of questions	What questions are asking?	Nature of responses	Reporters	Calculation of scores
TRAQ [4]	Chronic diseases	2	33	Skills	5-point Likert scale (Stages of change model)	Patient	1 point each
UNC TRxANSITION [17]	Chronic diseases	10	33	Knowledge & self-management	Interview style (cross-referenced with medical records)	Patient	Each domain=1 Maximum 10
Self-Management Skills Assessment Guide [16]	Chronic diseases	1	21	Health-care awareness & decision-making	5-point Likert scale	Patient & parent	1-5 for each item, total score: 105
SCIS [8]	CF	Multiple	44	Independent knowledge/behaviour	Yes/no	Parent	1point for Yes, 0 for No. Maximum 44
Readiness Questionnaire [9]	CF	2	24	Knowledge & behaviour	Multiple choice or short answer	Patient	1point each, Maximum 24
RTQ [10]	Renal transplant	3	22	Involvement in behaviours & overall transition readiness	4-point Likert scale (not/sometimes/often/always)	Patient & parent	1-4 each question Maximum 48
TRS [2]	Liver transplant	4	Patient: 42. Parent: 36	Skills, knowledge, behaviour	Likert scale & skill demonstration	Patient & parent	Items vary, Maximum 126 (parent: 108)
RCBRS [13]	T1DM	1	7	Readiness to change responsibility	5-point scale (Stages of change model)	Patient & parent	1-5 each item, maximum 35
McPherson et al. [14]	Sickle cell disease	5	NR	NR	Variable, mostly 3-point Likert Scale (knowledge section worth 4 points)	Patient	NR (high score = more ready for transfer)
TRQ [15]	HIV	6	21	Knowledge of disease & transition process	NR	Patient	1point each, 2 for disease knowledge

CF, cystic fibrosis; T1DM, type 1 diabetes mellitus; HIV, human immunodeficiency virus; NR, not reported.