Table 2.
Cohort characteristics of transition readiness assessment tools
|
TOOL |
COHORT CHARACTERISTICS |
|||||
|---|---|---|---|---|---|---|
| Disease | Number | Age (years) | Time since diagnosis/transplant | Race & gender | Country of validation | |
| TRAQ [4] |
Chronic diseases |
192 |
16-26 (mean: 19.7) |
NR |
64% white, 56% female |
USA |
| UNC TRxANSITION [17] |
Chronic diseases |
NR |
12-22 |
NR |
NR |
USA |
| Self-management skills assessment guide [16] |
Chronic diseases |
49 |
11-19 (mean: 15.6) |
NR |
86% Caucasian |
Canada |
| SCIS [8] |
CF (with pancreatic insufficiency) |
76 patients, 70 parents |
4-17 (mean: 11.2) |
NR |
94% white |
USA |
| Readiness questionnaire [9] |
CF |
36 |
NR |
NR |
NR |
Canada |
| RTQ [10] |
Renal transplant |
48 patients, 32 parents |
15-21 (mean: 18.6) |
5.73 y |
58% white, 29% black, 10% Hispanic |
USA |
| TRS [2] |
Liver transplant |
71 patients, 58 parents |
11-20 (mean: 15.6) |
1-19 y (mean: 9.4 y) |
56% female |
USA |
| RCBRS [13] |
T1DM |
69 |
12-17 (mean: 14.2) |
>6 months (mean: 5.49) |
87% Caucasian |
USA |
| McPherson et al. [14] |
Sickle cell disease |
69 |
14-21 |
NR |
43% female |
USA |
| TRQ [15] | HIV | 65 | 9-25 (mean: 15.8) | 1-17 years (mean: 10.5) | 44% female, 45% Caucasian | USA |
CF, cystic fibrosis T1DM, type 1 diabetes mellitus; HIV, human immunodeficiency virus; NR, not reported.