desire for incontinence to be framed as a health problem
more public awareness and information to reduce stigma
important to feel not only one dealing with these problems
when to communicate with health care provider; would appreciate health care provider to inquire about these problems first
want to prepare for occurrence of these problems
want “straight talk” from healthcare providers
general support from health care provider for managing these problems along with other dementia problems
mixed opinions about discussing problems with health care provider with care recipient present
inquiries after initial one should be considerate of treatment selected and potential for improvement (e.g., if only using pads, incontinence would not improve)
when to consider a nursing home and what to look for in a nursing home to manage these problems
Hispanic care givers desire resource materials in Spanish