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. Author manuscript; available in PMC: 2014 Sep 1.
Published in final edited form as: J Wound Ostomy Continence Nurs. 2013 Sep-Oct;40(5):515–523. doi: 10.1097/WON.0b013e3182a3ff24

Table 4.

Health Literacy Attitude Needs of Informal Caregivers of Caregivers of Individuals with Alzheimer’s Disease or Dementia

  • desire for incontinence to be framed as a health problem

  • more public awareness and information to reduce stigma

  • important to feel not only one dealing with these problems

  • when to communicate with health care provider; would appreciate health care provider to inquire about these problems first

  • want to prepare for occurrence of these problems

  • want “straight talk” from healthcare providers

  • general support from health care provider for managing these problems along with other dementia problems

  • mixed opinions about discussing problems with health care provider with care recipient present

  • inquiries after initial one should be considerate of treatment selected and potential for improvement (e.g., if only using pads, incontinence would not improve)

  • when to consider a nursing home and what to look for in a nursing home to manage these problems

  • Hispanic care givers desire resource materials in Spanish