Table 3.
Key themes and overarching categories
| Key themes | Competency identified as most relevant | Overarching categories identified for further discussion and voting |
|---|---|---|
| Advocacy role: Importance, Duration | 3 | Advocacy |
| Psychological care | 5 | Ongoing care |
| Service coordination (multidisciplinary team & multiagency) | 6 | |
| Patient/family development (trajectory of individual/family journey over time) | 6 | |
| Carers' needs (broad definition) | ? | |
| Ongoing management of condition and implications | 5 | |
| Respond to patient needs | 5 | |
| Patient expertise (recognizing and using) | 2 | |
| Quality assurance of (sensible and intelligent) information for staff and patients | 7 | Information management |
| Overreliance on IT | 7 | |
| Confidentiality | 5 | None identified |
| Triggers to make nurses ‘think genetics’ | 1 | |
| OK not to know, but act | 6 |