Table 1.
Sociodemographic and clinical characteristics of patients and caregivers
| Concept mapping | ||||||
|---|---|---|---|---|---|---|
| Data collection | Item structuring | Questionnaire | ||||
| Patient (n=16) | Caregiver (n=8) | Patient (n=10) | Caregiver (n=7) | Patient (n=78) | Caregiver (n=25) | |
| Median (IQR) | ||||||
| Age, years | 72 (14.5) | 69 (22) | 67 (16) | 51 (18) | 74.5 (16) | 60 (19) |
| Duration of vision impairment, years | 6.5 (11.4) | 6 (8.8) | 5 (8.0) | |||
| N (percentage*) | ||||||
| Gender (male) | 12 (75) | 3 (38) | 8 (80) | 3 (43) | 51 (65) | 7 (28) |
| Country of birth (Australia) | 8 (50) | 4 (50) | 5 (50) | 6 (86) | 41 (53) | 13 (52) |
| Marital status | ||||||
| Single, never married | 3 (19) | 0 (0) | 2 (20) | 0 (0) | 7 (9) | 2 (8) |
| Separated/divorced | 2 (13) | 0 (0) | 1 (10) | 0 (0) | 7 (9) | 3 (12) |
| Widowed | 2 (13) | 0 (0) | 1 (10) | 0 (0) | 15 (19) | 0 (0) |
| Married | 9 (56) | 8 (100) | 6 (60) | 7 (100) | 49 (63) | 20 (80) |
| Education | ||||||
| None/primary school | 1 (6) | 0 (0) | 1 (10) | 0 (0) | 6 (8) | 0 (0) |
| Some secondary school | 4 (25) | 2 (25) | 2 (20) | 3 (43) | 24 (31) | 10 (40) |
| Secondary school completed | 5 (31) | 3 (38) | 3 (30) | 4 (57) | 9 (12) | 5 (20) |
| Trade/some university | 3 (19) | 2 (25) | 1 (10) | 0 (0) | 24 (31) | 5 (20) |
| University degree or higher | 3 (19) | 1 (13) | 3 (30) | 0 (0) | 14 (18) | 5 (20) |
| Did not answer | 0 (0) | 0 (0) | 0 (0) | 0 (0) | 1 (1) | 0 (0) |
| Self-rated health | ||||||
| Excellent | 3 (19) | 2 (25) | 2 (20) | 1 (14) | 11 (14) | 7 (28) |
| Very good | 2 (13) | 1 (13) | 2 (20) | 3 (43) | 18 (23) | 6 (24) |
| Good | 7 (44) | 4 (50) | 4 (40) | 1 (14) | 27 (35) | 8 (32) |
| Fair | 3 (19) | 0 (0) | 0 (0) | 1 (14) | 15 (19) | 3 (12) |
| Poor | 1 (6) | 1 (13) | 2 (20) | 1 (14) | 6 (8) | 1 (4) |
| Did not answer | 0 (0) | 0 (0) | 0 (0) | 0 (0) | 1 (1) | 0 (0) |
| Primary cause of vision impairment | ||||||
| Age-related macular degeneration | 7 (448) | 6 (60) | 34 (44) | |||
| Diabetic retinopathy | 7 (44) | 2 (20) | 24 (31) | |||
| Glaucoma | 2 (13) | 2 (20) | 8 (10) | |||
| Retinitis pigmentosa | 0 (0) | 0 (0) | 8 (10) | |||
| Other | 0 (0) | 0 (0) | 4 (5) | |||
| Binocular visual acuity (better eye) | ||||||
| Mild (6/12–6/18) | 8 (50) | 6 (60) | 24 (31) | |||
| Moderate (6/19–6/60) | 7 (44) | 3 (30) | 37 (47) | |||
| Severe (>6/60) | 1 (6) | 1 (10) | 17 (22) | |||
*Percentages may not total 100 due to rounding.