Table 1.
Summary of the didactic content and organization of the University of Texas MD Anderson Cancer Center Lynch Syndrome Patient Education Conference
| Time | Didactic content | Educational format | Speaker |
|---|---|---|---|
| Morning |
1. Historical perspective of Lynch syndrome |
Lecture |
Gastroenterologist |
| |
2. Updates in genetic testing |
Lecture |
Genetic counselor |
| |
3. Gastrointestinal surveillance strategies |
Lecture |
Colorectal surgeon |
| |
4. Gynecologic surveillance strategies, |
Lecture |
Gynecologic surgeon |
| |
5. Living with Lynch syndrome |
Lecture & Volunteer patient panel |
|
| a) Psychosocial aspects |
|
Behavioral scientist |
|
| b) The Genetic Information Non-Discrimination Act (GINA) |
|
Genetic counselors |
|
| c) Patient perspectives of the disease |
|
Volunteer patients |
|
| Lunch |
Round-table topics included: “I am new to Lynch”; “I am a survivor”; Healthy lifestyle”; “Genetic testing and GINA” |
Round-table breakout sessions with 1–2 speakers and 8–15 attendees |
All speakers |
| Afternoon |
6. Advances in Lynch syndrome: update on research. (Emerging chemoprevention trials) |
Lecture |
Colorectal surgeon & Invited expert |
| Individualized question & answer | Free format | All speakers |