Table 2.

The University of Texas MD Anderson Cancer Center Lynch Syndrome Patient Education Conference patient survey

Question domains	Pre-conference survey	Post-conference survey
1. Respondent demographics	7 items (Multiple-choice)	0 item
	● Age at LS diagnosis
	● Demographics: age, gender, race/ethnicity
	● Marital status, educational background, and health insurance status
	● Method of diagnosis
2. Patient-reported experiences with LS	13 items (Multiple-choice)	0 item
	● Personal history of cancers diagnoses
	● Personal history of surgical interventions
	● Surveillance for LS-related cancers
	● Sources of knowledge regarding LS
3. Disease knowledge	12 items (Multiple-choice)	12 items (Multiple-choice)
	● Hereditary basis of LS	● Hereditary basis of LS
	● Transmission pattern	● Transmission pattern
	● Risks of LS-related cancers	● Risks of LS-related cancers
	● Surveillance strategies	● Surveillance strategies
	● Prophylactic options	● Prophylactic options
4. Patient needs assessment and feedback	0 item	19 items (Rating, multiple-choice, free text)
		● Learning needs addressed by the conference
		● Patient-reported further learning needs
		● Feedback regarding conference