Table 4.
Proportions of patients answering correctly to each of the twelve disease knowledge questions from pre- to post-conference surveys
| Disease knowledge question |
Patients correctly answering |
% Improvement in proportions of patients answering correctly | ||
|---|---|---|---|---|
| Pre-conference: no. (%) | Post-conference: no. (%) | |||
| 1 |
Lynch syndrome can be passed to a child through the mother or the father |
28 (100) |
28 (100) |
0.0 |
| 2 |
Within a family, Lynch syndrome can affect each family member differently |
26 (93) |
28 (100) |
7.1 |
| 3 |
Colorectal cancer is the only type of cancer that happens more often in people with Lynch syndrome |
24 (86) |
23 (82) |
−3.6 |
| 4 |
If you look like your parent who has Lynch syndrome, you are more likely to have Lynch syndrome yourself |
21 (75) |
24 (86) |
10.7 |
| 5 |
If a parent has Lynch syndrome, each child will have a 1 in 4 (or 25%) chance of having Lynch syndrome |
20 (71) |
23 (82) |
10.7 |
| 6 |
On average, people with Lynch syndrome have a 60-80% chance of developing cancer of the colon or rectum |
23 (82) |
26 (93) |
10.7 |
| 7 |
People with Lynch syndrome should have a scope exam of their colon or rectum every 1–2 years |
26 (93) |
28 (100) |
7.1 |
| 8 |
If a person with Lynch syndrome has his/her entire colon surgically removed, he/she no longer needs continued surveillance or evaluation of the remaining rectum or pouch |
25 (89) |
27 (96) |
7.1 |
| 9 |
Women with Lynch syndrome have up to a 60% chance to develop uterine/endometrial cancer |
25 (89) |
26 (93) |
3.6 |
| 10 |
Tests performed on the colon or uterine tumor tissues can be used to help diagnose Lynch syndrome |
19 (68) |
26 (93) |
25.0 |
| 11 |
Currently, there is only one gene known to be associated with Lynch syndrome |
22 (79) |
25 (89) |
10.7 |
| 12 | There is a blood test available that can often identify the genetic cause of Lynch syndrome | 24 (86) | 24 (86) | 0.0 |