Table 2.
Participant disease characteristics and late effects, by trajectory of social isolation
| Disease characteristics and late effects | All, n = 30 (%) | Never isolated, n = 11 (%) | Diminished isolation, n = 9 (%) | Persistent isolation, n = 4 (%) | Delayed isolation, n = 6 (%) | |
|---|---|---|---|---|---|---|
| Age at first diagnosis | 0–4 | 27 | 18 | 45 | 0 | 33 |
| 5–9 | 33 | 18 | 33 | 50 | 50 | |
| 10+ | 40 | 64 | 22 | 50 | 17 | |
| Type of cancer | Leukemia or lymphoma | 53 | 55 | 56 | 25 | 67 |
| Brain tumor | 20 | 0 | 22 | 75 | 17 | |
| Sarcoma (not including brain) | 20 | 27 | 22 | 0 | 17 | |
| Other solid tumours | 7 | 18 | 0 | 0 | 0 | |
| Treatments | Radiation therapy | 90 | 82 | 89 | 100 | 100 |
| Chemotherapy | 97 | 100 | 100 | 75 | 100 | |
| Surgery | 37 | 27 | 22 | 75 | 50 | |
| Bone marrow transplant | 3 | 9 | 0 | 0 | 0 | |
| Late effects and health problems | Second cancer | 30 | 9 | 22 | 50 | 17 |
| Learning difficulties or cognitive impairment | 30 | 9 | 44 | 50 | 33 | |
| Impaired growth and development | 43 | 0 | 44 | 100 | 17 | |
| Bone, joint, or soft tissue late effects | 40 | 27 | 56 | 75 | 33 | |
| Visual impairment | 23 | 18 | 78 | 50 | 17 | |
| Hearing impairment | 27 | 9 | 44 | 25 | 17 | |
| Impaired sexual development or infertility | 30 | 0 | 33 | 50 | 50 | |
| Cardiovascular late effects | 17 | 36 | 22 | 25 | 33 | |
| Respiratory late effects | 17 | 27 | 22 | 0 | 0 | |
| Dental late effects | 13 | 27 | 22 | 0 | 0 | |
| Endocrine late effects | 30 | 18 | 11 | 25 | 0 | |
| Digestive late effects | 20 | 18 | 56 | 50 | 0 | |
| Anxiety or depression | 37 | 0 | 44 | 100 | 50 | |