Table 2.

Family reported care burden of children with special health care needs by complexity.

	Less- Complex n=9,897,115	More- Complex n=324,323	Adjusted Odds Ratio (95% CI) / p value
Hours/week providing care coordination, median [IQR]	0 [0, 2]	2 [1, 6]	*<.001
Hours/week providing direct home care, median [IQR]	1 [0, 7]	11 [4,16-20]	<.001
Family paid >$1000 out of pocket, %	19	46	3.0 (2.3, 3.9)
Child’s health care caused financial problems, %	17	57	3.6 (2.7, 4.7)
Family member stopped working due to child’s health, %	12	54	2.9 (2.2, 3.9)
Family member cut work to care to child, %	15	46	2.2 (1.7, 2.8)
Needed additional income for med expense, %	15	49	3.0 (2.3, 3.9)

All data weighted. Analyses adjusted for age, insurance, income, usual source of health care, autism, mental retardation, emotional disturbance, cerebral palsy, seizure, joint problems.

^*p values reported for comparisons of medians by Mann-Whitney test.