Qualitative work |
FN women experience social, environmental, and institutional barriers to cervical screening, including poor access to healthcare, legacy of colonialism, and impoverished living conditions |
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Education before trial is crucial to help women understand why cervical screening is important |
Integrating randomized trial design with participatory action approach |
Frequent conversations with CBRAs and CSC introduced a tailored execution of the research project in each of the communities |
Incentives |
Using a lottery-based incentive program, prizes of increased value offer participants the opportunity to purchase groceries or other necessities that may not be available on-reserve |
Questionnaire |
Trial questionnaire focused on social and environmental factors related to cervical screening preferences |
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Psychosocial section will gather information about participants’ experiences and anxieties with cervical screening |
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Some participating women were forthcoming with personal histories of sexual abuse and violence, and wanted to include this information in the open-ended questions |
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When administering the questionnaires, CBRAs ask participants if they want these personal experiences included in the questionnaire |
Recruitment approach |
Educational events facilitated by the CBRAs launched the trial in each community, helping raise awareness about cervical screening and build relationships between Research Team and community |
Reflection meeting before Phase 2 |
Building upon a PAR approach, a meeting was held between the Research Team, CBRAs, and CSC to reflect on successes and improvements following the first offer of screening in communities |
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“In-person” approaches were most successful at recruiting participants in Phase 1 and were part of the Phase 2 protocol |
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There is a need for more community dialog between Research Team and community members and stakeholders. Discussing ongoing progress of ACCSS with communities will ensure that project is congruent with communities’ goals |
Knowledge translation |
At least three representatives from FN communities are invited to formally review publications and reports generated from ACCSS |
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CBRAs and CSC will help tailor strategies for disseminating research findings |
Participatory action approach |
Community engagement is foundation of PAR and helps widen ethical space |
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Social–ecological model depicts the multiple dimensions and targets of community engagement within ACCSS |