Table 1.
Characteristics of patients (n = 293) and family members (n = 405)
| Patient | Count (%) or median [range] |
|---|---|
| Age |
39 [0–87] |
| Female gender |
112 (38.9) |
| Living alone |
38 (19.7) |
| Unemployed |
53 (26.4) |
| Primary admission to ICU |
108 (37.2) |
| Secondary admission to ICU |
180 (62.1) |
| Knaus score |
1 [1–4] |
| Highest TISS score |
49 [15–80] |
| APACHE II within first 24 hours |
20 [2–42] |
| Length of stay [days] |
13 [3–242] |
| Status at discharge (died) |
28 (9.9) |
| - Adult patients (died) |
26 (13.8) |
| - Pediatric patients (died) |
2 (2.1) |
|
Family member |
|
| Age |
41.5 [16–87] |
| Female gender |
289 (71.5) |
| Relationship to the patient |
|
| Spouse |
92 (22.8) |
| Parents |
194 (48) |
| Siblings |
62 (15.3) |
| Other |
30 (7.4) |
| Not relative FM |
4 (1) |
| Time of transport to the hospital [min] |
40 [10–440] |
| Desired number of visits |
7 [2–8] |
| Wanted more information about diagnosis |
212 (52) |
| Wanted more information about treatment |
214 (53) |
| Wanted more information about prognosis |
226 (56) |
| Receiving contradictory information |
70 (17.4) |
| Length of staff contacts [min] |
10 [1–60] |
| Wanted help from psychologist |
110 (27.7) |
| Not helped by general practitioner |
258 (64.8) |
| Ignoring specific role of health care professionals |
51 (12.6) |
| Suitable duration of meeting with ICU staff [min] |
10 [1–60] |
| CCFNI score |
20 [14–36] |
| Failure to understand (diagnosis AND treatment AND prognosis) | 248 (61.9) |