Table 1.

Focus group participant characteristics (n=24).

Characteristic		Years or n (%)
Age		26-76 years (IQRa 49-60 years)
Gender
	Female	16 (67%)
Ethnicity
	Latino	18 (75%)
	Non-Latino	6 (25%)
Primary language
	Spanish	14 (58%)
	English	10 (42%)
Insurance status
	Uninsured	22 (92%)
	Insured	2 (8%)
Number of years participants have known about diagnosis		1-45 years (IQR 6-15 years)

^aIQR: interquartile range