Table 2.
Characteristics of 22 projects involving implementations of a generic PRO system. Projects with group level use (n=8).
|
|
A: Clinical epidemiological research | B: PRO for clinical databases | C: PRO monitoring for administrative purposes |
| Level of aggregation | Group | Group | Group |
| Implemented projects | 3 | 4 | 1 |
| Invoked elements (Figure 1) | Base | Base | Base |
| Patients | Breast cancer IHD Stroke |
Prostatic cancer Renal cancer Esophageal cancer Lung cancer |
Stroke |
| Recruitment | Hospital registers/clinical databases | Clinical databases | Hospital registers |
| Primary aim | Research | Hospital performance assessment | Hospital performance assessment |
| Extension | Regional | National | Regional |
| In operation from | 2004 | 2011 | 2012 |
| Patients (Jan 2014) | 11,898 | 8278 | 2735 |
| Questionnaires/ patient |
2-23 | 1-2 | 3 |
| Response rate (primary) | 81%-85% | 93% | 78% |
| Response rate follow-up | 91%-99% | N/Aa | 96% |
aNot applicable