Table 1.

LTNC register core dataset

Domain	Data fields	Value list/data description
1. LTNC	Do they have an LTNC?	Yes/no/not sure
If yes:
1a. Record neurological condition	Diagnosis or nature of condition	ICD-10 and/or read codes Free text to describe neurological condition if no code exists
1b. Long term	Is the condition likely to have an enduring effect?	Yes/no/not sure
2. Needs for care/support	Do they have complex needs arising from the LTNC?	Yes/no/not sure
If yes:
2a. Record impairment severity	Neurological Impairment Scale	17-item scores
2b. Record needs for health and social care	The Needs & Provision Complexity Scale (NPCS-Needs)	15-item scores
3. Need for ICP	Do they require (and want) integrated care planning	Yes/no/not sure
4. Person responsible for registration	Name of registering clinician	Name and signature
5. If yes to 1, 2, and 3
5a: Are they having integrated care planning?	When was last ICP review?	Date
5b: Is there a single point of contact?	Named person or post	Name Job title/contact details

ICP, integrated care planning; LTNC, long-term neurological condition.

Bold typeface indicates the principal questions.