Table 2.

Selected items for the final questionnaire, based on frequency of selection by the participants (n = 86)

Item	Origin	Category	Content	Frequency of selection in %	Reason for selection
1	P	A	Appointments compatible with school/working schedule	33.7
2	P	A	Same day emergency appointment	72.1	Top 2
3	P	CO	No difference based on insurance status	65.1	Top 3
4	P	CO	Easy access to follow-up prescriptions	45.3
5	P	CO	No unnecessary investigations	41.9
6	P	CO	Liquid laxative with acceptable taste	46.5
7	P	CO	Share experiences with other patients	43.0/51.2
8	P	CO	Treatment in specialized hospitals	51.2
9	P	AC	Clean and hygienic office	73.3	Top 1
10	P	AC	Sufficient number of clean restrooms	43.0
11	P	CC	Treatment always by the same doctor	48.8
12	D	CC	Cooperation of doctor with IBD clinics	44.2
13	D	CC	Smooth communication between GP and IBD doctor	41.9
14	P	CC	Involvement of psychologist/psychotherapist	65.1	Expert opinion
15	P	CC	Involvement of other specialized doctors	76.7
16	P	C	Individual treatment	53.5
17	P	C	Understanding of fears and worries	54.7	Female
18	P	C	Discusses investigations/results	50.0
19	P	C	Taking personal situation into account	47.7	Age 18-20
20	P	C	Devoting enough time	39.5	Age 15-17
21	P	C	Showing that it is important that the patient gets better	44.2
22	P	C	Bearing personal life planning in mind	38.4/39.5/32.6
23	P	C	Friendly and polite nurses	57.0
24	P	C	Understanding and respectful nurses	55.8/53.5
25	P	I	Explanations in easy-to-understand language	25.6	Age 15-17
26	P	I	Information about investigations/results	43.0/58.1
27	P	I	Listening/responding to problems	46.5
28	P	CM	Experience in IBD treatment	52.3
29	P	CM	up to date knowledge about IBD	45.3
30	P	CM	Alternatives to steroid treatment	40.7	Age 18-20
31	P	AU	Coordination of therapeutic decisions	48.8
32	L	AU	Facilitates 2nd opinion	46.5

Explanation: If two or three items were collapsed into one, the frequencies of all original items are shown (see Item 7, 22, 24, and 26). If an item was selected because of top preference in a subgroup (sex, age), this is documented in the last column. P = Qualitative Patient Survey, D = Qualitative Doctor Survey, L = Literature. A = Accessibility, CO = Costs and Organization, AC = Accommodation, CC = Continuity of Care, C = Courtesy, I = Information, CM = Competence, AU = Autonomy.